{"id":1565,"date":"2021-06-25T17:13:23","date_gmt":"2021-06-25T15:13:23","guid":{"rendered":"https:\/\/pharmavalue.it\/?p=1565"},"modified":"2021-12-20T14:49:16","modified_gmt":"2021-12-20T13:49:16","slug":"who-are-the-members-of-the-technical-table-for-rare-diseases-of-the-ministry-of-health","status":"publish","type":"post","link":"https:\/\/pharmavalue.it\/en\/who-are-the-members-of-the-technical-table-for-rare-diseases-of-the-ministry-of-health\/","title":{"rendered":"Who are the members of the technical table for rare diseases of the Ministry of Health"},"content":{"rendered":"<p>The Technical Table on Rare Diseases was established on 21 June 2021.<\/p>\n<p>The Table will bring together clinical and academic experts, institutional representatives and representatives of patients' associations and civil society, who will work together to bring to light the most pressing issues facing rare disease patients and their carers. It will have a multidisciplinary approach and will promote and encourage scientific research to understand the mechanisms underlying rare diseases and to develop new diagnostic and therapeutic approaches, also in the light of the new needs arising from the epidemic experience with the SARS-CoV-2 virus.<\/p>\n<p>Attached is the presentation of the Table with its components, its function and the role of the coordinator.<\/p>\n<div class=\"_df_book df-lite\" id=\"df_1568\"  _slug=\"chi-sono-i-componenti-del-tavolo-tecnico-per-le-malattie-rare-del-ministero-della-salute\" data-title=\"chi-sono-i-componenti-del-tavolo-tecnico-per-le-malattie-rare-del-ministero-della-salute\" wpoptions=\"true\" thumbtype=\"\" ><\/div><script class=\"df-shortcode-script\" nowprocket type=\"application\/javascript\">window.option_df_1568 = {\"outline\":[],\"backgroundColor\":\"eeeeee\",\"duration\":\"0\",\"autoEnableOutline\":\"false\",\"autoEnableThumbnail\":\"false\",\"overwritePDFOutline\":\"false\",\"enableDownload\":\"true\",\"direction\":\"1\",\"pageSize\":\"0\",\"pageMode\":\"1\",\"soundEnable\":\"false\",\"source\":\"https:\\\/\\\/pharmavalue.it\\\/wp-content\\\/uploads\\\/2021\\\/06\\\/Tavolo-tecnico-in-tema-di-malattie-rare_S1.pdf\",\"wpOptions\":\"true\"}; if(window.DFLIP && window.DFLIP.parseBooks){window.DFLIP.parseBooks();}<\/script>","protected":false},"excerpt":{"rendered":"<p>Il 21 giugno 2021 \u00e8 stato istituito il Tavolo tecnico in tema di malattie rare. Il Tavolo riunisce esperti clinici e accademici, rappresentanti istituzionali e delle associazioni dei pazienti e della societ\u00e0 civile, che lavoreranno di concerto per far emergere le pi\u00f9 urgenti problematiche dei malati rari e dei caregiver. Avr\u00e0 un approccio multidisciplinare, consentir\u00e0 [&hellip;]<\/p>\n","protected":false},"author":314,"featured_media":1567,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","footnotes":""},"categories":[9,64,12],"tags":[62],"class_list":["post-1565","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-appunti","category-malattie-rare","category-mapping","tag-malattie-rare"],"_links":{"self":[{"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/posts\/1565","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/users\/314"}],"replies":[{"embeddable":true,"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/comments?post=1565"}],"version-history":[{"count":0,"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/posts\/1565\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/media\/1567"}],"wp:attachment":[{"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/media?parent=1565"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/categories?post=1565"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/pharmavalue.it\/en\/wp-json\/wp\/v2\/tags?post=1565"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}