The poster addresses the evolution of the utilisation of the AIFA 5% Fund, established in 2003 for the acquisition of orphan drugs and the treatment of rare diseases. A distinctive feature of this fund is that it is funded by pharmaceutical companies with 5% of promotional expenses directed at doctors. The analysis aims to understand the allocation and expenditure of resources from 2010 to 2022.

Through data available on the AIFA website and OSMED reports, economic parameters such as budget, allocation, total expenditure, and final balance were considered. However, inconsistencies in the published data emerge, such as in 2020, where expenses reported in financial statements are lower than those indicated in OSMED reports. In 2021, the temporary suspension of AIFA activities was justified by only €8.5 million available, in stark contrast to the €159,352,000 declared in the 2020 budget.

Thanks to interviews conducted with AIFA members, it is possible to connect these discrepancies to the fact that the budget includes only unspent resources, excluding those already committed. This practice generates confusion regarding the actual availability of the fund.

The poster discusses the evolution of the use of the AIFA 5% fund, established in 2003 for the acquisition of orphan drugs and the treatment of rare diseases. A peculiar feature of this fund is that it is financed by pharmaceutical companies with the 5% of promotional expenses directed to physicians. The analysis aims to understand the allocation and spending of resources over the period 2010-2022.

Through the data available on the AIFA website and the OSMED reports, economic parameters such as budget, allocation, total expenditure and final balance were taken into account. However, there are inconsistencies in the published data, such as in 2020, where the expenditures reported in the budgets are lower than those in the OSMED reports. In 2021, the temporary suspension of activities by AIFA was justified with only €8.5 million available, in stark contrast to the €159,352,000 declared in the 2020 budget.

Thanks to interviews conducted with AIFA members, it is possible to link these discrepancies to the fact that the budget only includes unspent resources, excluding those already committed. This practice leads to confusion regarding the actual availability of the fund.